Former Photog Raising Awareness of Rare Genetic Disease

January 19, 2012 forum topics
Hello everyone. The TV station I used to work for, KTBS in Shreveport, LA, recently did a story on me and the incredibly rare genetic disease I have – Phenylketonuria (PKU). I thought you might like to see the story…

Text of the story is here: http://www.ktbs.com/community/30252319/detail.html

The video of the story is here: http://www.youtube.com/watch?v=XKSoM…feature=colike

Also, a few months ago I produced a short documentary mentioned in the story. You can watch it here. www.youtube.com/creativecontrolfilms.

Please do whatever you can to help raise awareness of this disease. If it weren’t for the treatment options mentioned in the story above, I would never have had my experiences as a photog and documentary filmmaker. Thanks!